genetic resources

Here is a list of genetic resources on the Internet that may be useful to parents seeking information on genetic diseases.

Resource Description
Online Mendelian Inheritance in Man Database of information on over 10,000 genetic disorders

GeneClinics Peer reviewed medical knowledge base relating genetic testing to diagnosis, management, and genetic counselling for inherited disorders

GeneTests Directory of genetic testing laboratories and genetic clinics

National Human Genome Research Institute The official National Institutes of Health (NIH) web site for the Human Genome Research Project

National Organization for Rare Disorders Information about rare "orphan" diseases; rare disease and orphan drug databases as well as other information for patients and families of patients with rare diseases

Alliance of Genetic Resource Groups As implied, a large coalition of support groups, patients, and professionals

American College of Genetic Medicine Policy statements, expert opinions and guidelines for physicians, and the online journal Genetics in Medicine

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